YUMA – Tobias Lugo is a 4-year-old preschooler who loves dinosaurs and watching TV.
He also has Moebius syndrome, a rare neurological disorder that prevents some people from smiling, frowning, raising their eyebrows or even blinking because of paralysis or limitations of cranial nerves. He also has endured multiple surgeries on his feet and left hand.
According to Johns Hopkins Medicine, Moebius syndrome is a “rare congenital (present at birth) condition that results from underdevelopment of the facial nerves that control some of the eye movements and facial expressions. The condition can also affect the nerves responsible for speech, chewing and swallowing.” Researchers estimate that the syndrome affects as few as 1 in 500,000 newborns, according to The National Library of Medicine.
Tobias’ mother, Eliza Moody, shares her family’s experiences and thoughts related to Moebius syndrome in her blog Smile With the Heart and on her Instagram account.
“I wanted to just start spreading that awareness, and let everyone know that my son was born with this. There are so many incredible anomalies out there that kids can be born with,” Moody said.
Her blog post titles range from “Why I don’t want to hear ‘He will be fine’” to “Having a child with limb differences.”